Health Care Transition and Disease Self-Management SIG


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SIG purpose/mission:
Our mission is to create a forum to promote discussion, collaboration, research and innovation among scientists, clinicians, advocates, policy makers, as well as youth and families who are interested in improving the health and healthcare of youth and young adults as they transition from adolescence to adulthood, from child health systems to adult health systems.   

Current SIG goals:
The goals of the Health Care Transition and Disease Self-Management SIG are to:  •Host an annual meeting that promotes discussion and collaboration related to research, clinical care and policy 

  • Collaborate with specialty societies and advocacy organizations to encourage discussion and review and promote best practices 

  • Maintain a list serve to foster communication among members of the SIG and others interested in Health Care Transition

Annual summary:
The 2018 Pediatric Academic Society Health Care Transition and Disease Self-Management (HCT-DSM) SIG in Toronto featured a theme of “Supporting HealthCare Transition: What’s Tools got to do with it”.  The intention was for the group to learn about the variety of existing tools to help measure and/or track patient readiness to transition to adult care, and to measure a provider or practice’s progress in helping youth transition to adult care.  Objectives included exposing the group to a variety of tools, understanding the merits and limitations of the tools, and being able to effectively utilize the tools to support transition planning.           The SIG session began with a speaker, Dr. Khush Amaria, who introduced the group to the Good 2 Go Program at The Hospital for Sick Children in Toronto.  Dr. Khush Amaria is a Clinical Psychologist in the Division of Adolescent Medicine at the Hospital for Sick Children, and Team Lead for the Good 2 Go Transition to Adult Care Program there.  She spoke about the tools used by the program such as the MyHealth Passport medical summary, and their readiness checklist for patients and parents.      Next, the SIG Co-Chairs spoke about the methodology for selecting the specific tools.  Since a large number of tools exist with varying levels of support from evidence, for the purposes of a small group discussion, a limited number of tools had to be selected.  The SIG Co-Chairs identified two categories of tools, those that assess patient transition readiness, and those that assess a practice’s delivery of transition services.  The search strategy and selection process for the specific tools in each category was explained to the group.  Four tools were selected from each category to be evaluated by the group.      Next the group was split into four subgroups.  Each subgroup was given the same four tools in the category and asked the discuss the following four questions amongst themselves.     What concepts /constructs related to transition do the tools measures/assess?  ​    How could the tools be implemented and what is feasibility? ​    What are the relative strengths and weaknesses of tools?​    How can the tool be used to improve transition-related outcomes ?​      The larger group convened after and discussed the questions, first for the patient assessment tools and then for the practice assessment tools.  There was robust interest and discussion after each of the sessions.        The discussion of the patient assessment tools highlighted a variety of things.  The organization of the tools were discussed, some being organized by developmental level and some by construct being measured.  The need for practicality and shorter length of the tools was emphasized, especially those being given to patients.  Also, the challenge of administering the same tool to heterogeneous patient populations, needing to have targeted interventions for each of the responses to questions on the tools, and whether or not the tool was scorable for billing purposes. For the practice based tools, there was an even greater variety.  There were differences in tools meant for individual providers that tracked their individual transition activities, and tools requiring deeper practice wide data to complete.  In addition, a tool that assessed practice performance based on a patient satisfaction questionnaire was discussed.  Group discussions again highlighted the need for an easy to use tool that was not complex.              The wrap-up session was a brief discussion about future sessions and plans for the SIG.  Future session ideas included a transition curriculum for trainees.  Discussions also included proposing a workshop for the next Annual Meeting, around designing a curriculum for providers or trainees on implementing healthcare transition best practices.     

Other groups (other SIGs and other groups not in the APA) that work in your area of interest:  

  • APA Complex Care SIG    
  • APA Developmental Behavioral SIG  
  • Health Care Transition Research Consortium
  • Got Transition
  • MPPDA – Med Peds Program Director Association
  • Society of Adolescent Health and Medicine
  • Society for General Internal Medicine – Adults with Complex Conditions Originating in Childhood
  • American College of Physicians – ACP Council of Subspecialty Societies
  • Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care, Baylor College of Medicine




Current SIG Co-Chairs:


Lynn Davidson, MD
3444 Kossuth Ave
Bronx, NY 10467
Phone: (718) -92-5271
ldavidso@montefiore.org

Parag Shah, MD, MPH
225 East Chicago Avenue Box 152
Chicago, COO 60610
Phone: (773) -41-4655
parshah11@yahoo.com

Jason Woodward, MD
3333 Burnet Ave
Cincinnati, OH 45229-3026
Phone: (513) 803-4793
jason.woodward@cchmc.org


Current SIG Mentor:


David Wood, MD, MPH
PO Box 70578
Johnson City, TN 37614
Phone: (423) 439-6222
wooddl@etsu.edu


 

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