New Resources - Supplemental Learning: Palliative Care


Palliative Care (including death and dying, pain management) 



Section Contributors:  Christopher J. Russell, MD and Cyrus Heydarian, MD 


Online Resources 


  1. American Medical Association. Module 6--Pain Management: Pediatric Pain Management 


This provides a short overview of pediatric pain management, including developmentally appropriate screening tools, pharmacologic and non-pharmacologic approaches to pain management, and extensive references for further exploration. (PC 1,2, 4, 5; MK 1) 




Palliative Care 

  1. Feudtnder, et al. Shifting Place of Death Among Children with Complex Chronic Conditions in the United States. JAMA 2007; 297(24):2725-32. 


Case series exploring the demographics of children with complex medical disease and where they die. (PC 1, 2; MK 1) 


  1. Himelstein et al. Pediatric Palliative Care. N Engl J Med 2004; 350 (17):1752-62. 


Overview of the evolving model of palliative care and the principles behind it. (MK1) 


  1. Committee on Bioethics and Committee on Hospital Care.Palliative Care for Children. Pediatrics 2000; 106: 


AAP statement paper describing the evolving model of palliative care. (MK1) 


  1. Santucci et al. Common Gastrointestinal Symptoms in Pediatric Palliative Care: Nausea, Vomiting, Constipation, Anorexia, Cachexia. Pediatr Clin N Am 2007; 54:673-89. 


Review of treatment for common end of life symptoms. (MK1) 


  1. Ulrich et al.  Assessment and Management of Fatigue and Dyspnea in Pediatric Palliative Care. Pediatr Clin N Am 2007; 54:735-56. 


Review of treatment for common end of life symptoms. (MK1) 


  1. Feudtner C. Collaborative Communication in Pediatric Palliative Care: A Foundation for Problem-Solving and Decision Making. Pediatr Clin N Am 2007; 54:583-607. 


Review of the importance of collaboration in conducting palliative care. (MK1) 




  1. American Academy of Pediatrics,/Committee on Fetus and Newborn and Section on Surgery,/Section on Anesthesiology and Pain Medicine,/Canadian Paediatric Society,/Fetus and Newborn Committee. Prevention and Management of Pain in the Neonate: An Update. Pediatrics 2006; 118: 2231-2241. 


This is the American Academy of Pediatrics policy statement surrounding the measurement, prevention and treatment of neonatal stress and pain with particular emphasis in the neonatal intensive care unit patient population. It reviews strategies for pain and stress reduction in three main areas: pain due to routine bedside care (e.g. venipuncture, mechanical ventilation), post-surgical pain and pain secondary to other bedside procedures (e.g. line placement, chest tube placement, and intubation). It highlights the need for accurate pain assessment and treatment in this vulnerable population. (PC 1,2, 4, 5; MK 1)